Self Help Clearinghouse
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Guardians of Hydrocephalus Research Foundation
National network. Founded 1977. Information and referral service to persons affected by hydrocephalus. Phone networking for parents of children with hydrocephalus. Referrals to doctors, newsletter, literature and books for children and adults with hydrocephalus (in English and Spanish). Membership fee $30/yr.
Write:
Guardians of Hydrocephalus Research Foundation
2618 Avenue Z
Brooklyn, NY 11235
Voice: 718-743-4473
Fax: 718-743-1171
Website: http://www.ghrforg.org
E-mail: ghrf2618@aol.com
Verified: 11/11/2007
Hydrocephalus Association
(BILINGUAL) National network. Founded 1984. Provides support, education and advocacy for people with hydrocephalus and their families. Provides a wealth of resource materials on hydrocephalus for all age groups, quarterly newsletter, directory of neurosurgeons, bi-annual national conference and scholarships for young adults. Support and information available in English and Spanish.
Write:
Hydrocephalus Association
870 Market St., Suite 705
San Francisco, CA 94102
Voice: 1-888-598-3789 or 415-732-7040
Fax: 415-732-7044
Website: http://www.hydroassoc.org
E-mail: info@hydroassoc.org
Verified: 9/20/2007
National Hydrocephalus Foundation (NHF)
National and international network. Founded 1979. Mission is to establish and facilitate a communication network amongst families or adult-to-adult, provide informational and educational assistance to individuals and families affected by hydrocephalus and increase public awareness. Promote and support research on the cause, prevention and treatment of hydrocephalus. Guidelines to help start support groups available. Help Sheets, brochures, physician referrals, 24-hour contact and quarterly newsletter.
Write:
National Hydrocephalus Foundation
12413 Centralia Rd.
Lakewood, CA 90715-1623
Voice: 1-888-857-3434 or 562-924-6666
Website: http://nhfonline.org
E-mail: hydrobrat@Earthlink.net or debbifields@nhfonline.org
Verified: 10/1/2007
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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