Self Help Clearinghouse
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Histiocytosis Association of America
International network. Founded 1985. Mutual support and information for parents and patients with this group of rare disorders. Includes Erdheim-Chester disease, sinus histiocytosis Rosai Dorfman, xanthogranuloma, hemophagocytic lymphohistiocytosis, pulmonary eosinophilic granuloma, histiocytosis and familial erythrophagocytic lymphohistiocytosis. Provides parent-patient directory to facilitate networking and communication. Funds research. Literature and pamphlets (some available in Spanish) and newsletter.
Write:
Histiocytosis Association of America
332 N. Broadway
Pitman, NJ 08071
Voice: 856-589-6606
Fax: 856-589-6614
Website: http://www.histio.org
E-mail: histiocyte@aol.com
Verified: 9/20/2007
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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