Self Help Clearinghouse
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Basal Cell Carcinoma Nevus Syndrome Life Support Network
National network. Provides support services to patients, families and medical professionals dealing with the many manifestations of basal cell carcinoma nevus syndrome (aka Gorlin syndrome or nevoid basal cell syndrome). Offers online forum, quarterly newsletter, annual retreat and conference and periodic regional meetings.
Write:
Basal Cell Carcinoma Nevus Syndrome Life Support Network
P.O. Box 321
% Sheila LaRosa
Burton, OH 44021
Voice: 1-866-834-1895
Fax: 440-635-0267
Website: http://www.bccns.org
E-mail: info@bccns.org
Verified: 12/20/2007
The Gorlin Syndrome Group
International network. 3 affiliated groups. Founded 1992. Provides support and information for individuals with Gorlin (aka nevoid basal cell carcinoma) and their families. Information on coping skills, treatments and current research. Helpline, newsletter, meetings and networking.
Write:
Gorlin Syndrome Group
11 Blackberry Way
Penwortham, Preston
Lancashire PR1 9LQ, England
Voice: 440 1772517624
Website: http://www.gorlingroup.co.uk
E-mail: info@gorlingroup.co.uk
Verified: 12/14/2007
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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