Self Help Clearinghouse
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The National Fragile X Foundation
International. 55 groups. Founded 1984. Mission includes phone and email support, promoting awareness, education, research and legislative advocacy regarding fragile X syndrome, a hereditary condition which is the most common known cause of inherited mental impairment. Services also include a quarterly journal, research grants, local, national and international conferences and educational resources (books and videotapes for a fee).
Write:
National Fragile X Foundation
P.O. Box 34
Walnut Creek, CA 94597
Voice: 1-800-688-8765
Fax: 925-938-9315
Website: http://www.FragileX.org
E-mail: NATLFX@FragileX.org
Verified: 1/18/2008
FRAXA Research Foundation
International. 30 affiliated groups. Founded 1994. Information and support on Fragile X syndrome. Funds medical research, investigator-initiated grants and postdoctoral fellowships. Newsletter and literature. Some chapters have support group meetings. Guidelines available on starting a similar group.
Write:
FRAXA Research Foundation
45 Pleasant St.
Newburyport, MA 01950
Voice: 978-462-1866
Fax: 978-463-9985
Website: http://www.fraxa.org
E-mail: kclapp@fraxa.org
Verified: 9/23/2007
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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