Self Help Clearinghouse
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National Spinal Cord Injury Association
National. 35 chapters and support groups. Founded 1948. Provides information and referrals on many topics to persons with spinal cord injuries and diseases, their families and interested professionals. Group development guidelines, monthly newsletter, support groups and peer counseling. Online listing of local chapters.
Write:
Nationsl Spinal Cord Injury Assoc.
6701 Democracy Blvd., Suite 300
Bethesda, MD 20817
Voice: 1-800-962-9629
Fax: 301-990-0445
Website: http://www.spinalcord.org
E-mail: info@spinalcord.org
Verified: 5/8/2008
Quad-List
Online. Provides a forum for quadriplegics (tetraplegics) to support and communicate with others who share the same condition. Not strictly a SCI (spinal cord injury) forum. Forum is for anyone who suffers a partial or full loss of function of all 4 extremities of the body, i.e. a quad due to any reason not just from a spinal cord injury.
Website: http://www.makoa.org/quadlist.htm
Verified: 9/25/2007
Barn Builders Peer Support Network
National network. Founded 1979. Provides peer support through networking for farmers and ranchers with disabilities. Connects recently injured individuals with persons with similar disability. Support through talking, correspondence and visitation.
225 S. University St.
W. Lafayette, IN 47907-2093
Voice: 765-494-5088 or 1-800-825-4264
Fax: 765-496-1356
Website: http://www.barnbuilders.info
E-mail: bng@ecn.purdue.edu
Verified: 9/20/2007
Ability Online Support Network
Online. Founded 1992. A family friendly monitored electronic message system that enables children and adolescents with disabilities or chronic illness (also parents/caregivers/siblings) to share experiences, information, encouragement, support and hope through messages. Registration is free.
Website: http://www.abilityonline.org
E-mail: information@ablelink.org
Verified: 12/20/2007
Family Village
Online. A global community that integrates information, resources and communication opportunities for persons with cognitive and other disabilities, their families and professionals. Broad range of discussion boards.
Website: http://www.familyvillage.wisc.edu
E-mail: familyvillage@waisman.wisc.edu
Verified: 11/10/2007
Sibling Support Project
National. 200 affiliated groups. Founded 1990. Organization dedicated to the life long concerns of brothers and sisters of children with special health, developmental and mental health concerns. Provides training and technical assistance regarding Sibshops and workshops for school-age siblings.
Write:
Sibling Support Project
6512 23rd Ave. NW, Suite 213
Seattle, WA 98117
Voice: 206-297-6368
Fax: 509-752-6789
Website: http://www.siblingsupport.org
E-mail: donmeyer@siblingsupport.org
Verified: 12/21/2007
Project DOCC (Delivery Of Chronic Care)
International. 28 chapters. Founded 1994. Provides education regarding the impact of chronic illness and/or disability on a family. Information, referrals, phone support, e-mail correspondence and 'how-to' guides on developing a local group.
Write:
Project DOCC
18 Dunster Rd.
Great Neck, NY 11771
Voice: 516-829-0786
Fax: 516-498-1899
Website: http://projectdocc.org
E-mail: projdocc@aol.com
Verified: 12/11/2007
United Spinal Association
National. Founded 1946. Aim is to provide support and improve the quality of life for all Americans with spinal cord injuries and disorders.
Write:
United Spinal Association
75-20 Astoria Blvd.
Jackson Heights, NY 11370-1177
Voice: 718-803-3782 ext. 1203
Verified: 12/20/2007
Paralyzed Veterans of America
National. 34 chapters and 58 field service offices. Aim is to ensure that spinal cord injured or diseased veterans achieve the highest quality of life possible. Membership is available solely to individuals who are American citizens with spinal cord dysfunction as a result of trauma or disease. Must have served on active duty and had an other than dishonorable discharge. Magazine, support groups, publications, VA benefits counseling, information and referrals.
Write:
Paralyzed Veterans of America
801 18th St. NW
Washington, DC 20006
Voice: 1-800-424-8200 or 202-872-1300
Website: http://www.pva.org
E-mail: info@pva.org
Verified: 10/26/2007
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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