Self Help Clearinghouse
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CHARGE Syndrome Foundation, Inc.
International network. Founded 1993. Networking of families affected by CHARGE Syndrome (coloboma of the eye, choanal atresia, cranial nerve abnormalities, characteristic ears, and other problems). Publications include CHARGE syndrome brochure, New Parent packet (12+ pgs.), 'CHARGE Syndrome: A Management Manual for Parents' (270 pgs), and conference papers. Membership ($15/families; $20/professionals; $30/organizations) includes quarterly newsletter and parent-to-parent support. Conferences in odd years (e.g. 2005).
Write:
CHARGE Syndrome Foundation
2004 Parkade Blvd.
% Marion Norbury
Columbia, MO 65202-3121
Voice: 573-499-4694 or 1-800-442-7604 (families only)
Website: http://www.chargesyndrome.org
E-mail: marion@chargesyndrome.org
Verified: 5/8/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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