Self Help Clearinghouse
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CFC International
International network. Incorporated in 1999. Mutual support for parents and healthcare providers of children with cardiofaciocutaneous syndrome. Strives to find and disseminate information on CFC syndrome. Offers newsletter, information, referrals, online listserv and phone support. Information on medical advisors and genetic testing. International clinic and family conferences every two years.
Write:
CFC Imternational
183 Brown Rd.
% Brenda Conger
Vestal, NY 13850
Voice: 607-772-9666
Website: http://www.cfcsyndrome.org
E-mail: bconger@cfcsyndrome.org
Verified: 5/9/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.
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