Self Help Clearinghouse
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Angioma Alliance
Online. Founded 2002. Support and information for any person affected by cavernous angioma of the brain and spine. Educational materials, support via a community forum, listserv, chats and contact information for research studies. Maintains tissue/DNA bank and patient registry. Site available in Spanish and (in a limited way) Portuguese. Hosts annual national family conferences and scientific workshops for researchers. Works to increase physician and public awareness of the illness.
Voice: 1-866-432-5226 or 757-623-0615
Website: http://www.angiomaalliance.org
E-mail: info@angiomaalliance.org
Verified: 12/20/2007
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.
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