Self Help Clearinghouse
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Aplastic Anemia and MDS International Foundation, Inc.
International. Founded 1983. Emotional support and worldwide support groups, free educational materials, information about current research and clinical trials, and financial assistance for persons with aplastic anemia, myelodysplastic syndromes, paroxysmal nocturnal hemoglobinuria and other bone marrow failure diseases. Financially supports research.
Write:
Aplastic Anemia snf MDS International Foundation
P.O. Box 310
Churchton, MD 20733
Voice: 1-800-747-2820 or 410-867-0242
Fax: 410-867-0240
Website: http://www.aamds.org
E-mail: help@aamds.org
Verified: 10/16/2007
Myelodysplastic Syndromes Foundation
Online. Unmoderated forums for patients and professionals dealing with myelodysplastic syndromes, a group of bone marrow diseases. Also has referrals to treatment centers.
Write:
Myelodysplastic Syndromes Foundation
P.O. Box 353
Crosswicks, NJ 08515
Voice: 1-800-637-0839 or 609-298-6746
Fax: 609-298-0590
Website: http://www.mds-foundation.org
E-mail: patientliaison@mds-foundation.org
Verified: 10/16/2007
Cooley's Anemia Foundation
National. 12 chapters. Founded 1954. Offers education and networking for families affected by Cooley's anemia (thalassemia). Fund-raising for research. Newsletter, annual seminars, research grants, patient support group, patient services, and chapter development guidelines.
Write:
Cooley's Anemia Foundation
330 Seventh Ave., Suite 900
New York, NY 10001
Voice: 1-800-522-7222 or 212-279-8090
Fax: 212-279-5999
Website: http://www.cooleysanemia.org
E-mail: info@cooleysanemia.org
Verified: 10/16/2007
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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